Hi everyone, today we went for the 2nd scan results and we were told the lymph nodes were shrinking, all except one and it was getting bigger. Dr. said we would have to do more chemo and wait and see. We asked about the surgery to remove the two tumors in the rectum and he said, he had not looked at the rectal tumors only the lymph nodes, and we are months away from surgery options. He also mentioned there was no need to put her through the horrific surgery if he could not contain the spreading and growth. Meanwhile, mom is back on pain meds for pain in her rectum, hurts to sit or lay and she mentioned to day she was having trouble urinating (very slow). He said she would now have to have another scan in the next couple of days, to look at the rectal tumors to see what is happening there. He did tell us finally that the rectal cancer (adenocarcinoma) was in stage 2 and the neuroendocrine carcinoma is in stage 4. Both tumors are in the rectum, collision tumor is what they are calling it, but the neuro has spread to all her lymphnodes. He still cannot give us any timeline or prognosis. Everything I read about the neuroendocrine says the prognosis is not good at all and stage 4 means little time. Anyone have any thoughts on that?
Thanks