On 8/22/2006 Susanlyn wrote:
Dear Marie, I hope your mom is doing well. It can not be easy for her with crohn's as well as the cancer. I have just finished with my first bout of surgery. I had a 29cm mass from the adrenal gland. It surrounded my kidney, and they had to take it, my gall bladder with stone, a scrapping on my liver, and they restructured my vena cava. Now I face chemo, but my oncologist doesn't seem to be in a rush to start as there is no protocol for this type of cancer. I wish I knew more and had the ability to ask the right questions. Have you had any luck with nutritional aids? I do best emotionally with prayers. I hope your mom is getting tons and tons of them. This must be very hard on you and your family. I know the other side too, as my mom died of Signet ring cell cancer 2 years ago and my son in law has Salivary gland cancer. I guess I just wanted you to know you are not alone, and bless you and your family, susan
Dear Susan,
Thank you for getting back to me. This is the first time I got to look at it, my mom passed away 12/23/06. She was a fighter, it was fast, she had little pain. Mom couldn't do the treatments, the side effects would have been worse because of the crohns. She wanted quality of life and that is what she got. This cancer sucks, I did find a web page T-GENE. Look into it. If you can't find the site please let me know, I will find it for you. Mom's last onoclogist tried thalidamide, but it was too late for her because it was to far gone the cancer, but he has a patient on it and it slowed it down, also Sutent was another medication he was looking at. The problem is these medicatins are not for adreanal cancer, so insurances make it hard to get them. We fought and did get the thalidamide she used it for a short time. Having crohns limited her, but for you it may not, don't give up try something, the side effects may not be bad. Please keep in touch and thank you for your reply. I will prayer for you, God Bless. Marie