My Name is Darcie, I have Protein S Defiency, it is a clotting disorder. I've been told that I could develop forms of blood cancer. I was diagnosed in 2000. In 2003 I was dianosed with a Pheochromcytoma yet another rare condition. It is a tumor of the adrenal glands, but mine was located on the bottom of my aortic artery and not the kidney glands. I have had the surgery to remove the tumor and also another tumor located behind it called a paraganglioma. With the grace of God all turned to be non cancer but yearly tests and scans for the next 5 years until the will say you re cured. Not a lot of information out there on either of the two or even if the two could be related.