My mom has such a rare cancer, only 1-3 people per million get this. It is Adrenocortical Carcinoma. It is a tumor of the Adrenal Gland. She was diagnosed in 2004, had surgery, and then again in 2005 and now 2006. She is recovering right now. We see the oncologist tomorrow. There isn't too much out there, beside my mom has crohn's disease which limits her, and she is a young 70. Mitotane has been suggested, has anyone taken this. They want to give her Doxil but too many harsh side effects she can't afford to get sick and activate her crohn's. I feel like I am living a nightmare. If anyone out has ever had this cancer I would love to hear from you maybe there is something we haven't looked at. God bless to all, and stay strong.
Marie