hi i had lgl 10 years ago, at that time they just said that i had a very low white blood count. after about 6 bone morrow biopsys they said it was lgl.
at that time none of the cancer research could give me much info. on this type of leukemia.
i went to the hup in pa. and the doctor (david porter) took the time to really to to me about lgl.
i had cemo. on and off for about 6 months.i had no white cells. i was getting blood everyday.high fevers (108) the treament was very hard but today i am doing great no meds. just check-up twice a year.
all the meds. that you are taking i did them too.
i developed allergies to a lot of meds.(all cillins like penicillin ofloxacillin, erythomycin and so on) when i went home i had to do home infusions for about 6 months.the meds.
my liver and spleen and kidneys are all fine.
i pray that all of you recover from this and i thank god everyday that i am doing great.
god bless you.