I am so glad to hear of even one success story with LGL.
I am at what the doctor says is the "point of no return for my liver failure". She tells me that liver involvement to this degree has not been seen before.
Again very happy to hear from you....in 4 years I have found no one who has been successfully treated.
I am currently on Cytoxan and showing no improvement, but was only given 20% hope for success. Have previously tried Cyclosporin and then Methotrexate which worsened my condition.
Not eligible for trials due to liver.
At this time I am seeking anyone who can tell me what to expect if liver continues to fail.
Keeping in touch with you all has been a tremendous help for me.
God Bless, Amos Moses