Thank you for your lengthy response. I have just started to have hand and foot syndrome, so far, just my heels + tingling. The rash I have covers most of my body. I did an online search last night and found that the rash is probably an allergy response, the story of my life, unfortunately. I have found tamanu oil has helped a lot with the flat "radiation burn" part, and I've kept my skin as moist as possible. My doctor actually knows a lot about Doxil responses and is very familiar with hand/foot syndrome (which I refer to as "hoof and mouth") but he had never seen anyone covered neck to toes with chemo rash from Doxil. His thoughts are to put me on Avastin and Taxol; my concern about hair loss is that I do speaking engagements at big events though I could become a brunette again with a fabulous little wig. Having chemo weekly is also an issue as I travel a lot. I am dealing with advanced breast cancer rather than ovarian cancer. I had a tiny lesion in one breast, one sentinel node and then the cancer went to my liver and lungs. I was diagnosed two years ago with Stage IV and have had no surgery other than the one lymph node. I was put on an aromatase inhibitor (blocks estrogen) and it worked well for a while. This is my first experience with chemo. I'm impressed how you women know all sorts of information about markers and tumor response. I run a business and have remained incredibly busy up until now, in part because I was determined that cancer wouldn't interfere with my daily life. I am now being humbled into understanding that I need to make some shifts in personal perception and to slow down a bit. I'm also faced with the challenge of being a single woman without a partner and money is certainly a major issue.
When you have time, please tell me what CTCA is. I'm in Santa Cruz California.
Thank you again for your response. I hope that you are able to knock the cancer into forever remission!