Hi Brian - I completely agree, someone should try to find out how many weren't told about PN and think about a class action suit. I mean, I'm sure no one would refuse a possible cancer cure because they MIGHT get PN too, but my feeling is that since the doctors and drug companies all know PN is a possibility, why aren't they addressing that along with cancer? PN may not be life-threatening but it certainly is no joke, esp. if you've just gone through (or are still going through) cancer therapy. And from what I've read, there's practically no research going on re PN.
I'm not sure how you could go about finding other people with the same issue; probably via chat boards like this one, or www.craigslist.com, where you can post uncensored "rants & raves" which others can read and respond to. I'm also sure anyone suffering from PN alone would rally to the cause, if only in the interests of freedom of information. Like I said, I've looked at hundreds of PN-related websites and never seen anything about it being caused by chemo. Stress (that's mine), diabetes, alcohol, toxic stuff, all sorts of things, but not chemo. It's like the right hand doesn't know what the left hand is doing. If I can help, let me know - have computer access, will type!
Rosy