Thanks, Andrea, for replying. We went to her "treatments" today (today was chemo and radiation day). You and her are so similar for moment I wondered if she was the one replying. She is 46 and the mother of two. She is doing well. Like you, her attitude is the best. Everyday she wakes up and thanks God for another day. I told her today about this site and I'm hoping tomorrow to show her how to get on it. I really think it would be good for her to talk to others with a similar illness. I worry that she's never gotten angry; she's just so accepting of the diagnosis. The problem for me is that I can't think of her as being ill because she doesn't show any signs of being sick. She's never had a cough, a cold, pheumonia, or any of the other symptoms that I've read about. Her annual check ups always come back clean and her blood tests are still showing "NORMAL". (normal for whom, I wonder?) She is really starting to get burned from the radiation but other than the tiredness, she has no other complaints. As long as they can keep giving her fluids to ward off the dehydration she does great. I was wanting to ask today what drugs they were giving her but I don't want to appear nosy. She said if she ever has any questions, she asks her doctor, and she trusts him to tell her the truth, so I just try to be supportive and to pass along any information that I find out about on my own. (I'm a born sceptic so I'm always looking for other opinions and options.)
I hope if they decide on a course of treatment for you, they do something similar. I worry sometimes that they aren't doing enough to try to prolong her life, but she is comfortable and very optimistic that when she's done with treatment she'll live for many years to come. I can only pray that that is the case.
You are the only other person her age that I've heard about with this. Everyone else in the oncology center who are going through treatments are many years older. I hope that you will continue to fight and remain optimistic. I just refuse to believe that you both won't have many more years with your children.
If you want Andrea, please let me kinow what your doctors decide what they want to do. I'm not going through it so I can't begin to claim to understand, but I will continue to pray for her and for you as well.
Theresa