Hi,
My name is Mary and I am 45. I was diagnosed with cml in August of 2005. I started Gleevec, 400 mg immediately. I have had many side effects. Swelling ankles and eyes, rashes, nausea, and such aching bones and exhaustion. The doctors feel that I am responding to Gleevec very well. They have told me that the longer I am on Gleevec that the riskier the BMT is. I have one sibling and she has not been tested yet. I wonder if anyone has heard the same thing about staying on Gleevec and what the long term ramifications of Gleevec are? Right now it seems like Gleevec is the easiest and best thing. I sure am thinking and praying for you and your daughter. It is all so shocking and I think it is easier for me to have the leukemia and accept it than to have had my children or husband have had it. I will have you in my prayers daily and be watching for new information and passing any new information along.