Dear Marie,
Read about the positive effects of the treatment with Indium-111 in pentetreotide that you underwent at Houston....does sound encouraging!! My mother was detected with neuroendocrine tumor that had metastasized to the liver in 2003. She was only prescribed Tomaxifin initially and was later started on monthly injection of Sandostatin LAR in 2005 as she had severe diarrhea. The tumour hasn’t shown a significant growth since. She has however started getting very unbearable pain in the stomach and the back lately. I was wondering if you ever experienced the same and if Ambrotose or the treatment with Indium-111 in pentetreotide would work for her?
Shilpi