On 12/10/2007
garzy wrote:
On 11/16/2005 Tigerlillygal wrote:
I have neuroendocrine pancreatic cancer surgically removed in 1998, but found out it had metastasized to the liver in 2002 and is inoeperable. I started receiving a monthly injection of Sandostatin and am still feeling wonderful, and my cancer has not grown since February.
My husband has inoperable neuroendocrine lung, liver and abdomen cancer and he has just had his first sandostatin injection, do you feel that has helped you? Garrett has no other symptoms except stomach bloating and fatigue. He does not have the diaheria or flushing I keep reading about. It took us 3 months to get a diagnosis. We need to find out other options of treatment. Gail Byrnes, Atlanta, GA.
Gail, I have had neuroendocrin tumor since 2002, originally it was mainly in the pancreas and liver, but now seems to be moving. I have been on Sandostatin for over two years and it was recommended both by medical oncologists and surgeons. However, only when the tumor was non moving Sandostatin was recommended on a stand-alone basis; in all other cases, I was given also many other chemos (various combinations of really powerful ones). I was at the George Washington University Hospital in DC at the time, with prof. James Ahlgren. Hope this helps. Marco