hi my husband is 34 yrs young. We are together 16 years and have 2 babies. he was dx with lung cancer in 7/04. Started chemo and wad doing quite well on his way to remission as of 04/05. He was admitted to the hospital for memory deterioration and confusion on 05/05. Apparantley the cancer spread to his spinal fluid with multiple lesions to the brain which had entered the blood brain barrier. They did 2 intra-thecal brain chemos and 15 sessions of radation. To which the spinal fluid was neg. for malignancy. However more tiny enhanced lesions appeared in the brain. Dr. decided to stop all forms of treatment as to not make him worse. Joe was admitted to hospice on 7/4/05. After much looking around Sloan Kettering was willing to review his records. At this point my hubby is not in any pain. He however cannot walk, talk and does not really want to eat. Overall he looks good and sometimes repies with a simple yes or no or nods or blinks his eyes. Drs at SK state we can possible use temodar to buy him some more time and maybe improve his cognitive skills, however, because of his recent spread of cancer, leptomeningeal carcinomatious, they still are recommending hospice and to probably not do this b/c he is comfortable and therefore no need to disrupt his quality of life. Taking the pill can cause internal hemmoraging and increased infection for him. In researsching this cancer, it is RARE and prognosis is usually poor. CAN SOMEONE PLEASE HELP ME WITH ANY INFORMATION / ADVICE AND OPIONS. many thanks
a desperate wife seeking help and advide, jessica