Dear Helenlee,
Your story really inspired me. My father was diagnosed with giloblastoma multiforme IV on Oct. 11,2005. He had surgery and they removed the large part of the tumor in the ocipital lobe At Hoag Hospital in Newport Beach Ca. He did have tenacils which we are treating.(They were on vacation at the time of his seizues)
We have since air lifted him back to the Phoenix area. He is also 76 and had never really been sick in his life. He takes Temodar 180 mg every day and radiation for 10 min. 5 days a week. He has lost some eye sight and his short term memory is not great.( he does not remember where he lives.) He is in a rehab center as after the perfect surgery he got a very high fever of 104.8 and we were very scared of septic so he is not walking by himself as of yet due to blood clots. It has just been one thing after another.
Sorry that I am rambling. Could you please give me more information on the nutritionist in Utah and also the monoclonal antibody 45. No doctor has mentioned that. They have mentioned the gamma knife and immunotherpy after his 6 weeks of radiation.
I just want my parents to enjoy their Golden Years and this Cancer is a nightmare. He is very tired and itches all the time.( i think this could be from the Temodar but we all want him to have the treatment.)
Only 3 more weeks...
Thank you again for sharing your story I am so happy for you and your husband.
Have a blessed Thanksgiving.
JoDee