Hi Tim,
I have a couple more questions if you don't mind. I know you said you were having your catheter removed soon. If this is too personal and you don't wish to share, I understand. Do you have a catheter that is inserted through the penis? The reason I am asking is because when we originally spoke to Dr Koch, he explained several options that we may be able to persue, depending on how much the tumor shrinks. One would be to rebuild the bladder with tissue from the intestenal wall(neo bladder I assume??)and urine would be excreted through the penis. The next best option was what they referred to as an Indiana pouch. That is just like the external bag, but it is on the inside. Urine would need to be excreted using a small straw-like tube about every 3 or 4 hours. The final option is the external bag. I know Dr Koch will answer all of our questions when we go back to Indy in December, but if you could share your experience with me (or correct me if I am wrong) I would appreciate it.
Thanks for your help.
Stephanie