My mother was diagnosed with a spindle cell sarcoma, Gastrointestinal stromal tumor about 2 years ago. She has had a couple of very difficult and painful surgeries. In January the doctors told her they have done all they can do and surgery when the tumors interfere with quality of life is the only treatment. They told her it would be a year before she needed to have some sort of aggressive treatment. Another doctor told her it she would only live another year.
She did try a new medication that was FDA approved for this type of cancer, but it did nothing for her cancer. My question is has anyone else had this type of cancer and what treatments have you had. We have sat around for 6months now and done absolutely nothing. Now she is in need of more surgery and the surgeon doesn’t want to do it because he is afraid the tumors would return faster than he could keep up with them. When she cannot stand the effects of having the tumors is when he will schedule surgery.