Phil
I am no great expert but I have some experience. As both
patient and carer.
This time, six years ago, I had a Hartmann for a metastatic
(into 4 lymph nodes) colon cancer which resulted in a
colostomy and then 6 months of full OLFOX chemotherapy. Etc.
Back in 1988 I gave up work to care for my son who had a
glioma grade 4 (brain cancer). It had started in 1982 and he
was given no more than 2 weeks to live. He finally died, after
years of slow disintegration, in 1992.
No two people are the same or experience what look like
similar problems in similar ways. But I think it always helps to
communciate. Do you think your wife would like to be in touch
with someone who has had a similar experience who can talk
closely to her?
How about you? Would you like to have a fellow carer to talk
to?
Where I live (NSW) the State Cancer Council has a Helpline (13
11 20) that can put either or both of you in touch with
someone to help. Even if you do not live in NSW, I am sure that
they can refer you to an assistance point in the State in which
you live.
Since I had my cancer I have become part of a trained patient-
to-patient network based on the Sydney Royal Prince Alfred
Hospital wher I was treated. We "veterans" help new patients by
talking through problems with them and sometimes referring
them to clinical or social experts who can assist. I have also
formed a colon cancer support group.
There is a lot of help available out there. You do not need to be
alone. Feel free to get back in touch with me through this
Message Board.
I'm with you.
John