Dear OBY,
You say you have received the topotecan since 8/02. How often do you have to get a treatment? Do you then get a break or is it ongoing? What has your quality of life been like?
I had my first surgery in December of 2002. I was in stage two C. Then I took carbo/taxol for three months and carbo/cisplatin for three months. My CA125 dropped to 9 which was great. Then in December 2003 it jumped to 19 and then kept climbing. We tried two treatments of carboplatin, then hormone pills for two months then I had a second surgery in June of this year and they got all the cancer they could find and repaired a hernia and now Doxil, which is horrible and I am not sure if it is working or not. I will find out in November when I return to MD Anderson in Houston. I have read so much about topotecan so would love to hear back from you.
Thanks and God Bless,
Marsha