Hi My name is Darcy, I am 46 years old female. I was diagnosed with MGUS in April 2007. I have read thru this thread and I feel or have felt everything all of you have written about.. I am a single mother, one is an adult now which gives me comfort that if I should become ill my son will take care of his little brother and baby sisiter.. my other son is 15 and I have a 6 year old daughter.
I understand about the ticking bomb feeling . I feel it everyday, like most of you it's not constant but it's there . Like I'll be walking down the street and see a grandmother with her grandchildren and think Wow! i might never have that , or an older mother and grown daughter out to lunch laughing and think my little girl will never have this.. It's scary and the people around me just don't get it .. they say what I would say to them I suppose, if the stories were turned like you can't think that way there coming up with new cures all the time ...but it really doesn't matter because they just don't understand the terror of it all . I am so glad that I have found this group to talk with women who understand what it really feels like to hold this the fear inside you everyday .