On 2/6/2008
Optimist1 wrote:
Hi to all. Have not posted here for a while, as I have been more active in the Yahoo MGUS group, which I recommend if you have not found it. There are some good suggestions for things you can do to be well. Not to change the MGUS, but keep you all around well.
I have now had this diagnosis (IgG lambda, kappa light chains (whatever they are)) for about a year. My M spike is a bit higher than last year, and now actually I have two of them. So I will go to see a hematologist. And my thyroid is also acting up, so I will go to see an endocrinologist. But the truth is that if I were not having regular physicals I would know none of this, cause I feel fine. Though I also now know that I have a bit of a compromised immune system, which explains lots of niggling things I have had my entire life. All niggling, fortunately!
My doctor says it is more likely that I will reach age 90 than that he will. (So I am wondering what is wrong with him!!)
Be well, think positive and best wishes to all!!
Hi,
I just found this group. Its nice to read about others that feel the same as I do. I was diaognosed with MGUS last year. It took almost 4 months for them to confirm that I didnt have active Multiple Myleoma which was gruling to have to wait for the results.
But I do agree that it is like living with a dagger over your head, at least in the beginning. I am 45 and have one daughter who is 25 and one who is 11 which as I was going thru it prayed that I would be around long enough to raise my younger one. I have Sjogrens Syndrome too which complicates things. All stress related stuff affects both diseases; how do you live with absolutley no stress?
But one year later I only think about it when I am close to having my blood drawn or I hear of someone having cancer. I have the Light Chain, a high M Protien..and was at 3-4% at my last test. After living with an auto immune disease for the past 12 years I am learing to manage my addition. I went to a MM meeting with a friend who is in stage 4 MM, I will not return.
Best wishes to you all, thank you for sharing your stories.