my original post was dated 11.06.05 about focused radation with temodar. just thought i'd update you all on mom.
she started her radiation treatments in early november along with 120 mg of temodar a day. she has completed both the radiation and chemo for now. she lost a swathe of hair around the sides and back of her head leaving a little patch on top and about a half inch at the base of her neck. she shaved that on down and looks a bit like a marine with a pseudo-mullet.
her spirits are unbelievably high. she has yet to feel any fatigue from her treatment, even though she entertained hordes of people at the house between thanksgiving and christmas. she is annoyed with everyone wanting to do stuff for her, as she insists that she can still do things herself. this cancer has made her feel very out of control and being able to do things for herself is one area she wants to be in control.
doctors initially planned on an mri at the end of january. for whatever reason, they are now looking at the end of march. depending on what they find out, she will most likely then go on a 6 six-week chemo regimen. she is not likely to do temodar again.
i am very thankful for this site as the support from everyone to total strangers is just amazing! best of luck to you all for happiness and good health in 2006!
jilly