My husband who is 41 was diagnosed 4 years ago with an inoperable brainstem astrocytoma grade2/3. Because it is "wrapped around the brain stem, surgery can not be done. He went through extensive radiation which shrank the tumor enough to get rid of his symptoms which were mostly dizziness and vision problems. He also was on Temodar for 18 months. Just this past October, symptoms again began and his growth was so minimal that the MRI was not catching it until his neuro-oncologist spead out all of his mris over the course of 4 yearsand caught the growth. It showed a small growth but enough to cause headaches and double vision. Mike has been on Temodar again since October. He takes 2 pills per day for 7 days, has a week off, then on again. Just Friday he had another MRi and the Temodar has not worked. Now this Friday, they are putting in a port and starting him on Camptosar (Cpt-11). Please, do any of you know anything about this or have known anyone who has used this? Mike will still continue the Temodar as well. Will he get really sick? I'm so scared and so afraid that if this doesn't work, we are running out of options. Our Neuro-oncologist Dr. Albright is wonderful but just doesn't say much. I know there are no guarantees or promises. I just need hope.
Patty...I continue to think of you and your husband. What was the quote you told me awhile back? Don't let tomorrows worries ...something like that. I need some support. I'm a mess. Thank you. Kim