On 9/25/2008
Too Young wrote:
On 9/24/2008
Caren wrote:
On 7/17/2006 Bondra wrote:
what is happening with your mom? my mom was just diagnosed and we arent sure if chemo is the best route? what did you guys do and what stage was she diagnosed at?
Hi Bondra,
I am new to this site. My mother was diagnosed with primary peritoneal cancer last week. Surgery is tomorrow, Sept. 25th, 2008.
We have the same questiosn regarding chemo. Please share what you found.
Thank you,
Chopps
Dear Chopps and Bondra,
I had all the rounds of the paxlitaxol/carboplatin and then the docliataxol/carboplatin with no results, my cancer just kept spreading. I was then put onto Caelyx which is not for a cure just to give you more time. In the end this was making me so sick that I asked them to stop as I was prepared just to die. I then got onto a doctor who administers high doses of Vitamin C and B17 intravenously. I was sceptical but thought hey what other chance do I have and now after 4 months of weekly treatments ALL my tumours have calcified. I DO NOT have any active tumours. Not bad for someone who the doctors have classed as terminal from day one and here I am 21 months later and feeling good. It is worth looking into at least. My doctor told me that the high doses of Vitamin C intraveously also can help the chemo to work while at the same time helping with the side effects of the chemo. Don't give up until you have tried everything both on the medical side and also the natural ... who knows what works for one person may not work for another !
Good luck to all of you xxxxxxxx you are in my thoughts xxxxxxxxx
Kathy
Hi Kathy,
Thank you for all this information. That is great news. I will keep you in my thoughts.
My mother had surgery today and they thought they were going to optimally debulk her. Unfortunately they were only able to suboptimally debulk her with 2 nodules remaining. 1 on an intestine and 1 on the pelvis ,,,he said he couldn't remove them with out taking an organ she needed. The positive side is he thought he was going to have to remove the bowel, however, the cancer did not penetrate the walls. He removed all the omentum which he said was very successful.
She now can not have Interperitneal Chemo because the size of the residual cancer is larger than 1 cm. Have you heard anything different?
Although disappointed we will remain positive and will work to find the best treatments. So any ideas and things you can share is wonderful.
I will now research sub optimal debulking. Comments?
I believe the surgeon is very competant and hard working. With that said, I'm concerned that they only do so much and I want to request the best treatments possible. We are with kaiser. He said the next step is chemo.
How did you find a doctor that administers vitamin C and B17 interveniously. I imagine this is not something a gynecological oncologist will recommend. How expensive is it?
Thanks for your wonderful email.
Chopps