I'm so inspired to hear your story Kelly and from those of you that have lived with this cancer for some time.
My sister (42) was diagnosed with PPC in December 2006. On the Thanksgiving prior her abdomin filled up which is how they detected her cancer. She started treatment at the end of December and had two ports - one close to her heart and the other in her abdomin. She finished her treatments in June 2006 but soon after her numbers started to climb. When she finished chemo in June her CA125 was 6. Then she started getting fluid in her lung lining so she had surgery last week where they created scar tissue to form around her lung so the fluid would not return. Thankfully, she has not had the fluid return to her abdomin. Tomorrow she meets with her doctor to plan her new treatment plan.
Since our mom died in 2004 of stomach cancer I can't stand the thought of losing my oldest sister (I'm the middle) but we remain positive. It is dreadfully painful to see what they have to go through.
Today I met with a genetisist (sp?) and they want my sister to be tested for BRCA 1 & 2 - which my sister agreed to.
I'm so happy to have found this site and thought I would share my story.
Best of luck to everybody - you'll all be in my prayers. Kelly