I have just found this site and want to share my story with everyone. My mother was diagnosed with PPC in 2001 at the age of 70. She went through a course of chemo and has been without symptoms since, although her CA 125 (as low as 25 when she completed chemo) has steadily climbed these past six years. She has had regular blood tests and CT scans every 4 months. Recently her CA 125 more than doubled from 800+ to 1700+ since her last test. Today she had a CT/PET scan and we are awaiting the results.
We know that she responded to chemo the first time and are optimistic that she will respond again. The doctor says there are at least three new chemo therapies that have been developed since her last treatment.
I am sharing this in hopes that someone will take comfort in knowing that it is possible to go as long as six years between chemo and recurrence and that there are new drug therapies available.
My thoughts are with all of you dealing with this dreadful disease and those who have lost loved ones to it.
Holly