On 4/6/2007
Daughterofduree wrote:
I have just found this site and want to share my story with everyone. My mother was diagnosed with PPC in 2001 at the age of 70. She went through a course of chemo and has been without symptoms since, although her CA 125 (as low as 25 when she completed chemo) has steadily climbed these past six years. She has had regular blood tests and CT scans every 4 months. Recently her CA 125 more than doubled from 800+ to 1700+ since her last test. Today she had a CT/PET scan and we are awaiting the results.
We know that she responded to chemo the first time and are optimistic that she will respond again. The doctor says there are at least three new chemo therapies that have been developed since her last treatment.
I am sharing this in hopes that someone will take comfort in knowing that it is possible to go as long as six years between chemo and recurrence and that there are new drug therapies available.
My thoughts are with all of you dealing with this dreadful disease and those who have lost loved ones to it.
Holly
Hi Holly
Thankyou so much for your above message. I am a 30 year old sufferer of this terrible disease and I am appreciating any good feedback I can find, as any information at all is hard to come by.
I was diagnosed in December 2005 and am about to have my 5th chemo. I started on paxlitaxol and carboplatin but had side effects and was changed to doclitaxol and carboplatin. You said above about other chemo treatments there were now and I was wondering if you have found out what they are. I am in Australia and am wondering if treatment is different any where else.
I hope your mother has once again responded well to treatment and is back on the road to recovery !
My thoughts and wishes are with you
Kathy