Primary Peritoneal Carcinoma

On 6/16/2007 Too Young wrote:

 

On 5/29/2007 Dragonfly2112 wrote:

 

On 1/19/2007 Too Young wrote:

Hi Survivor  I am a married 29 year old with a 4 month old baby and have just been diagnosed with PPC. I am about to start chemo this Tuesday and am wondering if you have any advice ? I had a pap smear after my little boy was born and this showed an abnormal smear which ended up to be cancerous cells on my cervix. They were all removed and when I was having my check up for that they found the tumour in my stomache. I had a radical hysterectomy, bilateral Salpingo Oopherectomy and omenectomy debulking. They say I am at stage 3 but wont explain much else. My oncologist seems quite positive about getting all the cancer but every where I read there doesnt seem to be a lot of hope. The cancer has spread to the lining of my liver, bowel, bladder and underneath my diaphram. What stage were you at when you started chemo ? any tips on handling the side effects of chemo ?? I want to prepare myself as much as possible !! Any advice would be great  

Hello. My name is Shannon..I am 31 years old and just recently I had an unusual Pap as well. Also was diagnosed with HPV..the strain that is known to cause cancer. I went in to my doctor initially because I had extreme bloating..lower back pain, frequent urination and heavy periods. I was DX with IBS some years back, but after the extreme bloating and heavy periods I decided to try to DX myself. I hit a survivor story message board for Ovarian cancer and read about their lives leading up to DX with OC. So I got scared and ran to the Docs. they did their ultra sounds and blood tests and called a week later and said nothing was wrong. But then 3 weeks later I get a call and they say I had an abnormal Pap and to follow up in 4-6 months. Well I asked what the exact test results said from the lab and they said CIN1. So I wasn't really worried. But then I did some more research and found that most people with CIN1 have HPV so I called my Doc back and had them run that test.  it was postive and the strain I have is the strain that causes Cancer.needless to say I go in for a Colposcopy this Friday, but I find myself not convinced that it is just CIN1 due to the symptoms that I have been having. Does this sound like what you went through. I have to prepar myself and so far I have been the one to push for tests to begin with. If I have no idea what I am getting into they will miss something. Looking back on my miserable feeling I have had for years...I know that This is something more. Please...if anyone has any info on what I need to do and ask my doc...let me know.

Hi Shannon

My only advice to you is to trust your gut feeling and keep pushing doctors to do the tests. They found I had a large tumour in my stomach but then waited another three weeks to operate. After having 6 lots of chemo they have told me there is nothing else they can do for me .... dont you love doctors ! so now i am seeing every chinese herbalist and naturopath possible and hoping that one gives me a miracle. There is unfortunately not that much information on this horrible disease so do as I said I get back to the doctors and push for more tests. If they wont do it go see some one else. I wish I had been a bit more pushy and hadnt just sat back thinking the doctors knew best as I may not be in the situation I am in now. Thinking of you Shannon and wishing all the best. Please let me know how you get on

Kathy  

 

 

Hi Kathy, Thanks for replying. I am doing my best to push doctors. At least this time I am dealing with my Doctor's PA instead of my actual doctor. He told me I has stress and to go to a spa or message therapist. Now at least I have a direction to follow and the PA is young and has more knowledge of the symptoms and takes people seriously. What caused you to go to the DR.s?. Did you have an abmormal pap as well? So far I am not finding anyone with symptoms that has HPV or Dysplasia. I do however suffer from alot of symptoms as I stated in my first message and I am very curious about all that. Why do I have symptoms at all. It is driving me crazy. If you have some time, please tell me your story.  I am very sorry to hear you are going through what you are going through. It is a hard thing to cope with. You are iim my prayers and if you need to chat I am here. Shannon