On 10/4/2006 Curlylocks wrote:
Just read all of your messages and am so thankful to have found this board. Thanks for all of your posts. It really is hard to find much information on this cancer.
My mom has PPC too... was diagnosed spring of 05. After surgery to remove her omentum she had an AWFUL few weeks in the hospital and then had to go back after she caught a bad infection following the first chemo treatment. Anyway, she made it through the six months of chemo and got back to a good standard of living... then I guess it was sometime this summer she started having trouble again... and has tried two different chemos this time... which don't seem to be helping... she keeps getting that fluid build up. About six weeks ago she had 4 litres drained... and then this week she had about the same drained.
I guess one thing I'd like some more information on... or to hear your experiences... is once this fluid build up starts... can anything stop it? Will it just get more frequent? It seems so awful... what happens next???
This is a really mean cancer... and it has shown us how strong our mom is. She battled an unrelated breast cancer back in 04 only to have this pop up on 05. Its very strange to me that she got two cancers... and the drs say they are completely unrelated.... like getting hit with lightning twice. So anyway I just feel so bad for what she's having to go through and wish there was some better treatment for this one!!! I'm with whomever suggested we need to raise awareness of PPC. It is so closely related to one type of ovarian cancer... so maybe we could team up with them...
I know your message was from last year, but your moms situation sounds so similar to my moms. She was diagnosed only one month ago with ppc. She had her omentum removed and now her pleural cavity keeps filling up with fluid. She had her first intraperitoneal chemo tx this week and is not tolerating it. How is your mom doing? Did you find any answers on why the fluid keeps coming back? Frustrated with no answers, Kelly