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Primary Peritoneal Carcinoma

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Subject: RE: Any Advice?
Date: 09/13/2007

 

On 1/18/2007 Wendymoo wrote:

 

On 7/20/2006 Annie2 wrote:

My mother was diagnosed with primary peritoneal carcinoma back in 2000. She had surgery and chemotherapy in 2000 and was healthy for the last 6 years. Unfortunately, they just discovered a new tumor so we're going through this again. She really doesn't have any symptoms at this point, they seem to have caught it fairly early this time. We are optimistic. The only advice I have is to hang in there and be optimistic. My mother had a good five years and we're hoping after this next round of chemo she will have more good years. Best wishes.

HI Annie2,

Can  I ask you where the tumor was located and how they found it?  How is your mom now?  Are they giving her the same type of chemo again?

I am a four year survivor of ppc but have been having some weird symptoms although all of my testing has been normal.  I am getting ready to have some ct scans done but I don't rely heavily on that test because it is very deceptive.  They were clear when I was diagnosed and thank god I had an aggressive oncologist who opened me up.....hence I am still here because of her.

Thanks for any information you can give me about your mom,  You are in my thoughts and prayers.

Wendy

 

Hi Wendy,

I haven't been on this site lately so I just saw your message.  My mom is doing pretty good.  She is still on chemo and is tired.  But to put that in perspective she played a round of golf today.   I believe that her tumor was between the liver and the pancreas in an area where they could not operate.  They discovered it by doing a scan after her CA125 test came back higher than usual.  Her CA125 level was at 900 which is elevated but much less than the 9000  level it was when she was first diagnosed with ppc in 2000.  I think that she was very lucky that they were able to see the tumor as that area is not always easy to see. 

I referred to her tumor in the past tense because we are hopeful that it is gone.  She is meeting with her doctor tomorrow to go over the results of her latest scan.  Her scan three months ago showed that it was less than 2 cm, down from 6 cm when previously measured.  Her doctors seem optimistic that the chemo can wipe out what is left of the tumor.  I just thank God that the chemo seems so effective for her.

I'm flying up to see my mom next week, she lives in another state and we are going to attend a seminar on genetic testing and ovarian and breast cancer prevention and early detection. 

I hope you are doing well.  Best wishes.

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