Hi! My name is Kelley. My 39 year brother Mark was diagnosed with cholangiocarcinoma in Oct. 2005. As we have begun the search for answers we have realized that the most important thing is to get in touch with all of you. Hearing your stories, treatments etc. help all of us to know what direction to go. Doctors handle the treatment for cholangiocarcinoma differently in different parts of the country. That's another reason to stay in contact with others who are dealing with this.
Our family, in connection with a few other families who are dealing with this, are working on a website specifically for cholangiocarcinoma. We feel this can be a help to all of us. I can't put the web address here, but if you would like it let me know. Good luck to all of you. We are in the battle for the lives of our loved ones.
Kelley