I'm 34 with stage 1B1 cervical cancer (adenocarcinoma) and just had my second cone biospy this week, along with a pelvic lymph node dissection. Until last Monday, I was debating two options; 1) radical hysterectomy and 2) radical trachelectomy. In my case, they decided at the last minute to try a repeat conization...but if that doesn't show clear margins, I will still need the hys. (and in most cases, even if we can hold off on the hys.,. we will probably need it later in life).
I bring up the issue of radical trachelectomy, as this is an option not mentioned by all onologists, as not many do the procedure. I had researched the team at USC in Los Angeles and Memorial Sloan-Kettering in NYC. The procedure removes the cervix, paritoneal tissue around the cervix, and a portion of the upper vagina and can leave the ovaries and uterus intact. While it DOES reduce fertility and increases the risk of pre-term labor, women have had successful pregnancies. As a young women, this option was worth researching. Do a quick google search and it brings up some info...you have to dig a bit, though.
I have been going through so many emotions about this (as I'm sure we all are in this situation), and it took me a long time to get to the realization that as much as a hys. at this young age is a hard thing to accept, it's so important to save our lives FIRST.
Good luck with your decision making...I know it's tough and I know it's surreal. You will make the right decision for you. Hang in there...and keep reaching out for help while demaning AS MUCH INFO as you can find.
I would be happy to chat more, if that would help. I'm still healing at home, but ok to chat online! ;-)
- Lori, Seattle WA