Hi Everyone,
My name is Kelley. My 39 year old brother Mark was diagnosed with cholangiocarcinoma in Oct. 2005. At that time we were told like many of you that there was not much hope. Since then we have been researching for information and trying to find others who are dealing with this disease. We have talked to many of you and have appreciated the good information you have given us.
We decided as a family, in conjunction with a few others families who are also dealing with this, that we wanted to start a website just for cholangiocarcinoma. We have given this information to some of you, but if you have not received it please go to www.cholangiocarcinoma.org. Please register on the site so that we can all share information. As I have been looking for others with cholangiocarcinoma, I have found many who post on a site and then never hear from anyone. We want this to be a place for all of us to share and receive information. If you are in contact with anyone else who would be interested in this site please share this info. with them.
As a family we are not ready to give up in this fight. Information is a very powerful tool. We hope this site will be helpful to all of us. If you have any suggestions for the site, let us know.
Thanks, Kelley