On 3/5/2006 Maryann v wrote:
Hi I too have Thrombocytosis. I found out when I went into have my pre-op blood work done for breast cancer. We had to put off my surgery for a few weeks while I took hydrea/hydroxyurea 2000mg a day to get it down to 600. They did a bone marrow biopsy while I was knocked out the day of surgery but didn't get what they wanted from it (whatever that means). They want to do it again but I don't want to do it unless I HAVE to. I had radiation for 6 weeks and my ptl went down to 350 with that, plus the hydrea. Did you have a bone marrow biopsy? How painful was it? Are you on medication yet? For how long? Is this forever? Like you, I wish I knew more about this and who I should be seeing. I now go to my Oncologist should I be seeing a blood doctor? It is nice to know there are more of us out there. PS after requesting my blood work reports for the past 4 years I found that i have had this for at least that long untreated. My GP never said anyting to me.
i have been on hydroxyurea for 4 years with little side effects. you can live till 90. but you have to get counts once or twice a mouth. red count goes down alittle. i take 500 to 10000 a day. pete from long island