My son was diagnosed with lgl leukemia when he was 14. Our lives have never been the same since. He is now 18. He had his spleen taken out several months ago. It was 16 times larger than it should have been. He is always tired. The worst thing is that he gets fever and infections so easily. His anc has been 0 many times. It is always super low. He tries to work but has to miss most of the time. He takes penicillen and gcsf shots. He was on methotrexate for 2 years. He has been hospitalized many times. It is very rare for a teen to have this. I've read how people die within 10 years of being diagnosed of this. It worries me. What should I expect? Is their any other treatment? Has anyone had any experience with this disease? It's like no one knows much about this. Thanks.