Dear Mom of Teen: I can not offer you the magic bullet that you want. I can only offer my sympathy and understanding at this time. My daughter, now 50 years, was first diagnosed as having an unrecognized blood disorder that seemed something like leukemia when she was 5. Her health has been a roller coaster ever since with hospitalization for many different infections, a curse of the worst imaginable exzema, in agony due to ulcerations in mouth and other cavities and on and on. Last year, she was diagnosed with LGL Leukemia. For the last 3 months, she has received monthly intravenous doses of gamma globulin to help maintain her red blood count and they seem to work for the time being. Who knows what the future holds for her and for those who love her?
But there is a bright side. She is married and enjoying her good spells though her desire to have been a mother can not be realized. She holds a full time job. Whenever she is well enough, she participates actively in our family life.
My wife has been responsible for bringing her this far, bless her. She cared for her meticulously even to a limited degree after her marraige. So we thankfully have some good times to enjoy and remember.
Hope is what you have. Defy the odds and believe that with care there will be many years of togetherness ahead. That is what has kept us going. It will work for you too.
ALC