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Anyone Familiar With Pontine Gliomas??

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Kaylas Mom
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Subject: Dipg - 15 Months Out - no Symptoms
Date: 11/28/2006
I am more than happy to share what I have learned since Kayla’s diagnosis. God has blessed us greatly. She was diagnosed on August 23, 2005 with a diffuse intrinsic pontine glioma. It was big. See the My Story portion of the website: www.caringbridge.org/visit/kaylalucius and scroll down to see all MRI results and treatments.

When Kayla was diagnosed, we were immediately signed up for radiation treatments and chemo (Temodar) without giving it a second thought. As you know, you are in such panic, shock, and disbelief and we signed everything the doctors gave us – and IF we did all that to our child, we were told we would have a 10% chance of her surviving 1 year but it would probably be 6 – 9 months because her tumor appeared very aggressive.

After the radiation treatments were over we had our month break of no chemo. I started going through every dipg child’s website I could find. As you know, just about each child has radiation and then chemo. Most have a stable period and then practically all of them have a recurrence and die. It is just numbing. I couldn’t find any dipg children that had survived on conventional medicine no matter what chemo they had used. I am sure there must be some but I do not know who. The children who survived the longest on chemo seemed to also have Dr Jeanne Wallace’s diet and supplements. Some were also using chiropractic care, homeopathics, laser treatments, protocel, and other treatments. No matter what they did though, trying to detoxify while continuing with the chemicals is self defeating in my opinion. We have chosen to go after the cancer, not just the symptoms (the tumor) and we pray that Kayla's body will heal itself like it was supposed to in the first place.

We prayed and prayed about it and decided that God was telling us to go against our doctors and stop the chemo and all other prescriptions. We had read a million success stories from people using alternatives to cure cancer and we logically we knew we had nothing to lose. It says right in the bible that we are to heal ourselves with the plants and it also tells how to eat properly. One of my favorite books is “The Makers Diet”. So we have made this our approach. We don’t know that she will survive, only God knows. We just go day by day and are thankful for what He has done and taught us.

There are many ways to get your body back to a proper balance in the world of alternative medicine. We started first with Dr Wallace and then started Dr Banerji’s protocol of homeopathics. We then began with our holistic doctor and learned even more. There is so much to understand and I am still at the beginning somewhere. Our bodies are amazing and God designed them to heal themselves if given the right nutrients. Everyday I study a little more and try to implement what seems doable for a 7 year old.

During the radiation treatments we went to a brain tumor conference and learned of Dr Jeanne Wallace, a nutritionist. She is very informative and I HIGHLY recommend her if you don’t already use her. Her website is: http://www.nutritional-solutions.net/index.html . It costs $350 for her HUGE written report and a 1 hr phone consultation (she is wonderful to talk to). It is worth the money, although overwhelming.

The homeopathics, Ruta Grav 6C and Cal Phos 3X are showing good success rates in gliomas in particular. If you are not familiar, I suggest you join the Ruta Yahoo Group online. This group will tell you everything you need to know about Ruta. http://health.groups.yahoo.com/group/Ruta6/ There is an especially impressive slide presentation of Dr Banerji’s with before and after scans of brain tumor patients at http://www.fidelibus.com/SOL-BRAIN.htm .

We have a wonderful, Christian holistic doctor that performs laser therapy on Kayla each week and manipulates the bones around her brain stem to encourage fluid movement. He is a chiropractor and also got us started on more detoxification treatments to get the toxins out of her body. (Her hair test from Dr Wallace showed that she was loaded with heavy metals like most cancer patients.) We have been doing the laser and footbath treatments since Jan 06, right after we stopped all the prescriptions. The footbath that we use not only detoxifies through her feet but puts a negative charge in her body. Our bodies are negatively charged and there is much study done on how to heal our electrical bodies.

I am sorry this is long. I feel that there is a lot of hope for these children (and anyone with cancer) and just wanted to share some other options besides the standard ones. May God's peace and mercy be with you all!!

In Christ,
Brenda L.

Messages History for "Anyone Familiar With Pontine Gliomas??"

  1. Anyone familiar with Pontine Gliomas??
  2. Diffuse Pontine Glioma
  3. Pontine Glioma
  4. Pontine Gliomas
  5. Diffuse Pontine Glioma
  6. my Son
  7. Help!!
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  10. 24 Year Old With Pontine Glioma
  11. Dipg - 15 Months Out - no Symptoms
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  13. Other Options Exist!!
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  15. Hope
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  17. RE: Other Options Exist!!
  18. RE: Other Options Exist!!
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  20. Http://www.caringbridge.org/visit/ashleychristian
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  23. Diffuse Pontine Glioma
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  127. RE: Anyone familiar with Pontine Gliomas??
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