I read Kaylas mom's message tonight and thought I would respond. My little girl was diagnosed with a pontine glioma in January 2005. She had just turned one. Because of her age the doctors didn't force the issue of radiation and chemo, though they left it as an option for us. My wife and I both felt like we didn't want to do that to our child, so we began looking into alternative treatments. Long story short, we ended up trying chiropractics, and have tried to control her diet by not giving her any foods with bleached or processed sugars (though that can be hard with the way food is made these days). We have our annual MRI in the morning, which is what prompted me to even check up on what news is out there on pontine gliomas.
So far my daughter is doing fantastic! She's doing better than we thought possible when we first found out. We were told not to expect her to see her second birthday. We just celebrated her third birthday in style with friends all dressed as princesses. She has no long lasting symptoms of the tumor other than an occasional crossed eye, and that seems to be getting better each month.
I guess the reason I wanted to write this tonight was to let people know that, like Kaylas mom, we have found hope in other treatments for these tumors. We use a NUCCA chiropractor. The theory makes sense, so we continue on. At the end of the day I understand it's all in God's hands. If he chooses to bring my little girl home early, that's His decision, and I trust Him in that. It can happen to any of us at any time. I don't know if the chiropractic work is the thing that has helped my girl the most, or if it's just the good grace of God, but I know He puts people here on the earth with knowledge to help us along the way. If that means chiropractic for my daughter, then I'm happy to go with it. I just never felt good about putting chemicals in my child to try to help her.
I don't want to knock conventional medicine. I'm so grateful for it. I believe both conventional and holistic have a place. We'll find out a lot more tomorrow after the MRI. I'm going in nervous, but optimistic because of the progress my girl has made. I hope the tumor is gone, but quite frankly, I'll take stable, considering the normal prognosis for this type of tumor. It's been two years, and she's never been better!