I'm so sorry that I haven't responded. I've left so many messages places. My son's webpage is www.caringbridge.com/ct/cameron.
I can be reached directly through that page. I will talk to any parent that is going through this with me. The botttom line is that there is no cure. There are a few new trials out there. I keep going based on the fact that there are so many diseases that had no cure one day and curable the next. Tomorrow might be our day. My faith in God helps the most. He knows me better than anyone.
We will get through this!