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Anyone Familiar With Pontine Gliomas??

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Subject: RE: Dpg
Date: 03/19/2007

 

On 3/15/2007 Mlorr wrote:

Sue,

 My niece was diagnosed two weeks ago with a tumor, yesterday they finally confirmed that it was a dipg, she is not doing well at all, she can barely speak, cant walk, and is slowly getting worse. She is going to start radiation today and I am wondering if you could tell me a little about what has worked for yuor niece, and if you are already taking ruta 6.

 Thanks,

 mary


Mary

So sorry to hear of your niece's diagnosis.  It is an AWFUL tumor!!  My niece is in the final stages of the cancer and is not doing well.  I would however strongly recommend that you look into the ruta6c calc/phosphate as that did help my niece, we just found it too late, I fear.  Also other people that I have read have skipped chemo and radiation in favor of chiropractic and homeopathic medicines and their kids seem to be doing good.   Also I would recommend that you investigate the Burzynski clinic.  Go on his website and read all you can about his treatment.  I believe he is currently doing a study on dipg that he just started this spring.  Doc's don't like to send you to his clinic, but it might be worth checking into.  Look into all you options closely!!!  Best wishes to you!!

Sue

Messages History for "Anyone Familiar With Pontine Gliomas??"

  1. Anyone familiar with Pontine Gliomas??
  2. Diffuse Pontine Glioma
  3. Pontine Glioma
  4. Pontine Gliomas
  5. Diffuse Pontine Glioma
  6. my Son
  7. Help!!
  8. Pages
  9. Pontine Glioma my 7 yr Old Daughter What to do Next
  10. 24 Year Old With Pontine Glioma
  11. Dipg - 15 Months Out - no Symptoms
  12. Mislead
  13. Other Options Exist!!
  14. Misled
  15. Hope
  16. RE: Other Options Exist!!
  17. RE: Other Options Exist!!
  18. RE: Other Options Exist!!
  19. Help
  20. Http://www.caringbridge.org/visit/ashleychristian
  21. Pontine Glioma
  22. Diffuse Pontine Glioma
  23. Diffuse Pontine Glioma
  24. Dpg
  25. Dpg
  26. Brain Stem Glioma
  27. Dpg
  28. Cody G.
  29. RE: Dpg
  30. RE: Dpg
  31. RE: Dpg
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  37. Concerned Bereaved Mother
  38. 24 Year Old Wit Pontine Glioma
  39. Concerned Bereaved Mother
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  41. RE: Diffuse Pontine Glioma
  42. To Any Parent That Had or Has a Child Dpg
  43. Diffuse Pontine Glioma
  44. Concerned Bereaved Mother
  45. Concerned Bereaved Mother
  46. Pontine Glioma
  47. Pontine Glioma
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  51. 24 yr Old
  52. 24 Year Old
  53. Pontine Glioma
  54. RE: Diffuse Pontine Glioma
  55. RE: Diffuse Pontine Glioma
  56. RE: Diffuse Pontine Glioma
  57. RE: Diffuse Pontine Glioma
  58. RE: Diffuse Intrinsic Pontine Glioma
  59. RE: Diffuse Pontine Glioma
  60. RE: Diffuse Pontine Glioma
  61. RE: Diffuse Pontine Glioma
  62. RE: Diffuse Pontine Glioma
  63. RE: Diffuse Pontine Glioma
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  66. Update
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  75. Eileen m
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  78. to The Shoot From The Hip
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  80. Shot From The Hip
  81. Robyn c
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  83. Diagnosed 6/7/06
  84. Hope
  85. Pontine Glioma
  86. Goodbye
  87. Diffused Intrinsic Pontine Glioma
  88. Your Daughter
  89. Dr. Burzynski
  90. Dr. Burzynski
  91. Dr. Burzynski
  92. Wanda and Randy
  93. Dr. Burznyski
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  97. Saying Goodbye
  98. RE: Diagnosed 6/7/06
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  100. Teresa
  101. Re: Dipg Hope
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  127. RE: Anyone familiar with Pontine Gliomas??
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