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Anyone Familiar With Pontine Gliomas??

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Subject: Pontine Glioma
Date: 09/06/2005
I am so sorry to hear about your granddaughter. I pray for each child I hear about, and the family. This is a very difficult thing to face and watch.
My niece was diagnosed with a pontine glioma June 7th of 2005. She has completed the radiation and is now resumed the chemo which is Temador. Her tumor shrunk 1/3 of the size and they say should show more shrinkage with the next MRI. Her symptoms have improved right much for a period of time. Now she is experiencing double vision again. They say it is because of them reducing the steroids too soon. I don't know and it worries me alot. They had to put her back on a dose of 3 mg. of steroids. I hope that is all it is.
I hope things will be alright with your granddaughter. I hope the MRI will show no growth of the tumor. My prayers are with your family and your precious granddaughter.
Sincerely!!!!

Messages History for "Anyone Familiar With Pontine Gliomas??"

  1. Anyone familiar with Pontine Gliomas??
  2. Diffuse Pontine Glioma
  3. Pontine Glioma
  4. Pontine Gliomas
  5. Diffuse Pontine Glioma
  6. my Son
  7. Help!!
  8. Pages
  9. Pontine Glioma my 7 yr Old Daughter What to do Next
  10. 24 Year Old With Pontine Glioma
  11. Dipg - 15 Months Out - no Symptoms
  12. Mislead
  13. Other Options Exist!!
  14. Misled
  15. Hope
  16. RE: Other Options Exist!!
  17. RE: Other Options Exist!!
  18. RE: Other Options Exist!!
  19. Help
  20. Http://www.caringbridge.org/visit/ashleychristian
  21. Pontine Glioma
  22. Diffuse Pontine Glioma
  23. Diffuse Pontine Glioma
  24. Dpg
  25. Dpg
  26. Brain Stem Glioma
  27. Dpg
  28. Cody G.
  29. RE: Dpg
  30. RE: Dpg
  31. RE: Dpg
  32. RE: Dpg
  33. RE: Dpg
  34. Diffuse Pontine Glioma
  35. Utah Nutritionist
  36. Nutritionist
  37. Concerned Bereaved Mother
  38. 24 Year Old Wit Pontine Glioma
  39. Concerned Bereaved Mother
  40. Brain Stem Glioma
  41. RE: Diffuse Pontine Glioma
  42. To Any Parent That Had or Has a Child Dpg
  43. Diffuse Pontine Glioma
  44. Concerned Bereaved Mother
  45. Concerned Bereaved Mother
  46. Pontine Glioma
  47. Pontine Glioma
  48. Pontine Glioma
  49. Pontine Glioma
  50. 24 Year Old
  51. 24 yr Old
  52. 24 Year Old
  53. Pontine Glioma
  54. RE: Diffuse Pontine Glioma
  55. RE: Diffuse Pontine Glioma
  56. RE: Diffuse Pontine Glioma
  57. RE: Diffuse Pontine Glioma
  58. RE: Diffuse Intrinsic Pontine Glioma
  59. RE: Diffuse Pontine Glioma
  60. RE: Diffuse Pontine Glioma
  61. RE: Diffuse Pontine Glioma
  62. RE: Diffuse Pontine Glioma
  63. RE: Diffuse Pontine Glioma
  64. Pontine
  65. Concerned Bereaved Mother
  66. Update
  67. Pontine Glioma
  68. Concerned Bereaved Mother
  69. Jayden
  70. Pontine Glioma
  71. Eileen Mac
  72. Diffuse Pontine Glioma
  73. Pontine Glioma
  74. Thank You Teresa
  75. Eileen m
  76. St. Jude's Hospital
  77. Why go Into Details
  78. to The Shoot From The Hip
  79. Eileen Mac
  80. Shot From The Hip
  81. Robyn c
  82. Eileen m.
  83. Diagnosed 6/7/06
  84. Hope
  85. Pontine Glioma
  86. Goodbye
  87. Diffused Intrinsic Pontine Glioma
  88. Your Daughter
  89. Dr. Burzynski
  90. Dr. Burzynski
  91. Dr. Burzynski
  92. Wanda and Randy
  93. Dr. Burznyski
  94. Wanda
  95. Wanda
  96. Dr. Burzynski
  97. Saying Goodbye
  98. RE: Diagnosed 6/7/06
  99. RE: Diagnosed 6/7/06
  100. Teresa
  101. Re: Dipg Hope
  102. Prayers
  103. Kayla Lucius Good Mri Results 8 Months Out
  104. my Daughters Passing
  105. my Boy Cody 7 Years Old
  106. Pontine Glioma - Cure/treatment
  107. i Need Help For my 3 Year Old Daughter
  108. my Nephew Has Dpg
  109. Some Information
  110. Help For Amanda's Daughter
  111. What I've Found Out...........
  112. Theraloc
  113. Theraloc
  114. Monoclonal Antibody Research
  115. Just an Update to Let You Know..
  116. Theraloc
  117. Theraloc
  118. Theraloc
  119. Theraloc
  120. my Grandson's Journey With Dpg
  121. Pontine Glioma Research
  122. Angel Wings
  123. Angel Wings
  124. Alyssa Rose
  125. Alyssa Rose
  126. Your Journey
  127. RE: Anyone familiar with Pontine Gliomas??
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