My niece has a pontine glioma. She has finished radiation and is on her second round of chemo. The chemo is Temador. They reduced her steroids to 1.5 milligrams. They had to up this again because she was experiencing the double vision again and her walking was off again due to the double vision. I would like to ask you a question if I may. Will the reduction of the steroid cause double vision, or is that strictly related to the tumor growing. She is so swollen in her face. Can alot of fluid cause the double vision.
What has your son been through and when you say he is doing really good can you give me details if you don't mind.I hope I am not asking too much of you. I want to see how much he improved to see if my niece really experienced a good amount of improvement.
Thank you so much,
Tammie
I truly do hope your son will continue to improve.