I am writing because I want to provide as much information to parents of children with this devistating disease. My daughter lost her battle with diffuse pontine glioma in April of 2006. My thoughts and prayers are with you. Zarnestra was one of my daughters kemo study drugs. She had'nt had any sucess with that drug, one of the biggest side effects for her were severe hives, she eventually had to discontinue use of the drug. Please, if you need any emotional support, or have any futher questions, email me --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at
http://www.cancercompass.com/common/guidelines.html ---I will be happy to help out in any way that I can. I am praying for your family.