Average Rating:Rating
Rate this Discussion: rate!

Anyone Familiar With Pontine Gliomas??

Expand all Messages
Caregiver
Caregiver
Eileen Mac
Recommend this Message
Subject: Pontine Glioma
Date: 04/18/2006
Hi all - My niece was just diagnosed on April 1, 2006 with the worst kind of tumor, intrinsic pontine diffused glioma. She just turned 6 years old in January. She is in St. Jude's but I am seeking alternative remedies that may also be helpful.

Has anyone heard of Protocel? If so, have they heard of it helping?

Thanks so much for your help. Here is Maria's website if you want more info: www.prayersformaria.com. Thank you.

Eileen

Messages History for "Anyone Familiar With Pontine Gliomas??"

  1. Anyone familiar with Pontine Gliomas??
  2. Diffuse Pontine Glioma
  3. Pontine Glioma
  4. Pontine Gliomas
  5. Diffuse Pontine Glioma
  6. my Son
  7. Help!!
  8. Pages
  9. Pontine Glioma my 7 yr Old Daughter What to do Next
  10. 24 Year Old With Pontine Glioma
  11. Dipg - 15 Months Out - no Symptoms
  12. Mislead
  13. Other Options Exist!!
  14. Misled
  15. Hope
  16. RE: Other Options Exist!!
  17. RE: Other Options Exist!!
  18. RE: Other Options Exist!!
  19. Help
  20. Http://www.caringbridge.org/visit/ashleychristian
  21. Pontine Glioma
  22. Diffuse Pontine Glioma
  23. Diffuse Pontine Glioma
  24. Dpg
  25. Dpg
  26. Brain Stem Glioma
  27. Dpg
  28. Cody G.
  29. RE: Dpg
  30. RE: Dpg
  31. RE: Dpg
  32. RE: Dpg
  33. RE: Dpg
  34. Diffuse Pontine Glioma
  35. Utah Nutritionist
  36. Nutritionist
  37. Concerned Bereaved Mother
  38. 24 Year Old Wit Pontine Glioma
  39. Concerned Bereaved Mother
  40. Brain Stem Glioma
  41. RE: Diffuse Pontine Glioma
  42. To Any Parent That Had or Has a Child Dpg
  43. Diffuse Pontine Glioma
  44. Concerned Bereaved Mother
  45. Concerned Bereaved Mother
  46. Pontine Glioma
  47. Pontine Glioma
  48. Pontine Glioma
  49. Pontine Glioma
  50. 24 Year Old
  51. 24 yr Old
  52. 24 Year Old
  53. Pontine Glioma
  54. RE: Diffuse Pontine Glioma
  55. RE: Diffuse Pontine Glioma
  56. RE: Diffuse Pontine Glioma
  57. RE: Diffuse Pontine Glioma
  58. RE: Diffuse Intrinsic Pontine Glioma
  59. RE: Diffuse Pontine Glioma
  60. RE: Diffuse Pontine Glioma
  61. RE: Diffuse Pontine Glioma
  62. RE: Diffuse Pontine Glioma
  63. RE: Diffuse Pontine Glioma
  64. Pontine
  65. Concerned Bereaved Mother
  66. Update
  67. Pontine Glioma
  68. Concerned Bereaved Mother
  69. Jayden
  70. Pontine Glioma
  71. Eileen Mac
  72. Diffuse Pontine Glioma
  73. Pontine Glioma
  74. Thank You Teresa
  75. Eileen m
  76. St. Jude's Hospital
  77. Why go Into Details
  78. to The Shoot From The Hip
  79. Eileen Mac
  80. Shot From The Hip
  81. Robyn c
  82. Eileen m.
  83. Diagnosed 6/7/06
  84. Hope
  85. Pontine Glioma
  86. Goodbye
  87. Diffused Intrinsic Pontine Glioma
  88. Your Daughter
  89. Dr. Burzynski
  90. Dr. Burzynski
  91. Dr. Burzynski
  92. Wanda and Randy
  93. Dr. Burznyski
  94. Wanda
  95. Wanda
  96. Dr. Burzynski
  97. Saying Goodbye
  98. RE: Diagnosed 6/7/06
  99. RE: Diagnosed 6/7/06
  100. Teresa
  101. Re: Dipg Hope
  102. Prayers
  103. Kayla Lucius Good Mri Results 8 Months Out
  104. my Daughters Passing
  105. my Boy Cody 7 Years Old
  106. Pontine Glioma - Cure/treatment
  107. i Need Help For my 3 Year Old Daughter
  108. my Nephew Has Dpg
  109. Some Information
  110. Help For Amanda's Daughter
  111. What I've Found Out...........
  112. Theraloc
  113. Theraloc
  114. Monoclonal Antibody Research
  115. Just an Update to Let You Know..
  116. Theraloc
  117. Theraloc
  118. Theraloc
  119. Theraloc
  120. my Grandson's Journey With Dpg
  121. Pontine Glioma Research
  122. Angel Wings
  123. Angel Wings
  124. Alyssa Rose
  125. Alyssa Rose
  126. Your Journey
  127. RE: Anyone familiar with Pontine Gliomas??
Expand all Messages
close




Sending...
Required Fields All fields are required.
close
User is No longer Ignored
Show messages from this user
close
Report Abuse
Anonymous Note to Administrator:

Reporting
Latest Messages Show More
RE: question on night swe Posted by Janelle33 on 12/01 09:25:05 PM
MMMT/Mixed Mullerian Tumo Posted by 36sabal on 12/01 09:23:40 PM
Just started Gemzar and X Posted by sweetiepie on 12/01 09:19:34 PM
RE: My father has a liver Posted by Weadocm on 12/01 09:16:10 PM
RE: need to talk, I need Posted by markinenoch on 12/01 09:14:47 PM
Great Doc at your service Posted by Weadocm on 12/01 09:14:01 PM
RE: New Patient Posted by kteach08 on 12/01 09:10:22 PM
RE: Can I be cleaning too Posted by Weadocm on 12/01 09:08:36 PM
RE: feeling bad...... Posted by jeffs58 on 12/01 09:08:33 PM
RE: Advice on PET re: pot Posted by Weadocm on 12/01 09:05:34 PM
RE: My Dad's CEA Level... Posted by Weadocm on 12/01 09:03:15 PM
Bladder Cancer - 3D Medical Animation