Carla,
I am excited to hear that your son is doing well. My son was diagnosed with a pontine glioma on March 23, 2005. We are currently in the middle of radiation and Temodar, Zofran and Decadron (which we are tapering). Can you give me some more info? Justis is also doing well considering all he is going through, no real side effects other than tiring easily and feeling more tired than usual. And of course the weight gain from the Decadron, which is one reason we are tapering it, so they won't have to make another mask for radiation. Any info or encouragement is greatly appreciated. All of the info I have gotten so far has been dismal.
Thanks in advance
Sonya