Cams Mom,
My 11 yr old son was diagnosed with dpg on 3/11/05, he is being treated at St Jude, finished with radiation and is on a clinical trial taking Zarnestra (aka tipifarnib). So far he's doing well, only time will realy tell, but your message said that you had a lot of information and as you've been reseaching for longer I would be grateful for your knowledge. One thing we are doing is paying close attention to nutrition, something that is overlooked by conventional doctors and we feel very important, we have found a nutritionist in Utah that specialises in brain tumors and specifically gliomas. Max's only symptoms so far are double vision and a very slight movement on right side in certain tests. Look forward to hearing from you. Thanks