Hi again guys,
My dad had his last MRI on 2/22. no new growth. YEAH He is weaker weaker over the past weeks. His hemoglobin and platelets are low (100K platlet count) When I asked about next Temodar our onc told me today only gave us the last treatment b/c WE wanted to. He said his performance stance would not normally be indicative of treatment. He says if his platlet count get close to 110K he would begin treatment again only if we would sign off on it.
My dad says he is not ready to give up. We had a real scare last week after I had been there for a long weekend my mom called me back in town the next day becasue his breathing had become extremely labored and w/congestion and been barely eating for days (Hosp staff had asked us many times if we will do a DNR order) Now he has made a comeback after visits from fam and friends. He is back to eating full meals and seems to have more energy. For those of you who have been through this already how have you come to decide when to stop the chemo. My dad wants to live! We have been letting him make all decisions up to now and would like to continue as long as we think he is able. I can see how there might be complications from the chemo but also resurgence of growth if he goes off. (his last treatment was 2/1)any feedback on how you've handled this would be great. Thank you so much.
Stay strong!and be well! christine
Ps Rauna --I've been thinking of you. I hope you are doing well.