I hope someone can offer some help. My husband has GBM dx 1/05. He had surgery, radiation, and Temodar. He has just completed one year of Temodar. But he is having a very hard time tolerating it, as it seems to get worse with each treatment. But he is 14 months out with no regrowth, so obviously something is working. His doctor says he could discontinue now if he wants to, but he recommended that he stay on it for another year. This was depressing news for my husband. He continues to work full time, so that makes the treatment more difficult also. How long has anyone else stayed on Temodar? Any help would be greatly appreciated.
Patty