Hi,
My mother was just diagnosed with Glioblastoma Stage IV. She is currently recovering post-surgery (about a week out) and goes to Duke to consult with Dr. Friedman's team on Mon/Tues.
I have been visiting her in NC for about a week, as I am a PA-C in cardiac surgery in Boston, and unfortunately, cannot be here for the treatment course. She lives with my aunt, and will have one of my 5 brothers/sisters around to help out.
Right now, she has word-finding/speaking difficulty, and trouble reading/comprehending. She is sometimes confused, but usually right there with you.
She is the sweetest, most beautiful person I have ever known.
My question is if people have had a good experience with treatment in NC, and if so, what was the treatment course? Were any people in one of the trials with Dr. Friedman?
Right now, my mother can take care of herself, save for insulin dosing, and scheduling appointments, driving, etc. I am wondering what to expect, and anyone has any good ideas for the future.
If necessary, I will transfer her up to Boston, and take care of her with the help of her brother who lives close, and my brothers/sisters.
I am very scared, and we will do all that we can to beat this-so far, I am told that we will not use the cyberknife, and that there are two lesions, one of which was debulked in the initial surgery/biopsy. She is taking only Dexamethasone now, with chemo (Temodar) and radiation planned, in addition to any trials that are discussed next week.
Thanks in advance
Chris