This is my very first post here as I just tonight found you. I was diagnoised with another RARE brain disease called Sporadic OPCA. Don't feel bad if you have never heard of it because hardly anyone has, even many doctors. It is a degenerative, neurological disease where the Cerebellum and brain stem shrink. The early symptoms are mostly, VERY poor balance,and falling. (Many others a little later on.) During my routine PCP visit I had a CBC. The Doctor saw the elevated white cell count and ask me if I felt sick. Of course, I didn't and he immediately referred me to a Hemotoligists/Onchologists. The the latest diagnosis was CLL. Now I said all that to say this.
Am I in MORE trouble physically because I now have 2 diagnosis???? He did say that I was at 0 stage....which I understand is early but does anyone know it the CLL might move faster because of the sOPCA diagnosis or should one be uneffected by the other. What have you found to be the best course of action, if any??
New to all this......~! Thanks...Lindy