Hi. Was diagnosed with GBM IV in early April. I had a huge tumor that was discovered because I had headaches. Before resection, I had numbness in left side. It got really better after rehab following surgery. Sense of smell and taste were also messed up before the resection. It seems to have gotten worse from radiation and chemo (temador). Have 30 more days of treatment before taking a break and seeing what the evaluation will be.
MY BIG QUESTION IS...how do you know you're getting close to the end? With it being the brain, do you even know? What do we have to prepare ourselves for?
I am doing fine, really fine. Did not lose facial capabilities nor speech. Very lucky. Have not had a seizure either, but on Dilantin for prevention.
Sometimes depression is overwhelming and mood swings very unusual.
Please keep in touch, and I will do the same. Can't wait to see the next MRI.
Take care, Peace.